Some Dance to Remember: Exploring the Psychosocial Effects of the Introduction of an Adaptive Irish Céilí Dance Group Activity with People Living with Dementia and their Carers
| dc.contributor.advisor | Stritch, Jennifer Moran | |
| dc.contributor.advisor | McKenna, Carmel | |
| dc.contributor.author | O'Shea, Sean Donal | |
| dc.date.accessioned | 2024-02-19T10:29:06Z | |
| dc.date.available | 2024-02-19T10:29:06Z | |
| dc.date.issued | 2021-08 | |
| dc.identifier.citation | O'Shea, S.D. (2021). Some Dance to Remember: Exploring the Psychosocial Effects of the Introduction of an Adaptive Irish Céilí Dance Group Activity with People Living with Dementia and their Carers, Thesis (Master of Arts by Research). Limerick Institute of Technology | en_US |
| dc.identifier.uri | https://research.thea.ie/handle/20.500.12065/4736 | |
| dc.description.abstract | There are currently 64,000 people living with dementia in Ireland and this figure is expected to rise to 150,000 by 2045. To date, a biomedical approach to managing the condition has been primarily adopted however, more recently, alternative methods have gained traction. Arts-based activities, including dance, are one such alternative. This research aimed to explore, in the context of the psychosocial effects of dance and movement, the experiences of facilitators and participants in a newly developed adaptive Irish Céilí dance programme for people living with dementia and their care staff. Research which explores the use of this dance genre as an arts based activity for those living with dementia or their care staff is limited. This research which included participants living with dementia attending, and care staff working in, a daycare centre in the mid-west region of Ireland, therefore provides a starting point to address this gap. The focus of this research is on the participants’ lived experience. A qualitative approach, utilising semi-structured interviews, researcher observations, and a reflexive journal, was therefore deemed the most appropriate for this research. The dance activity took place over a nine week period. Interviews were staged prior to the first dance activity, at the mid-point of the dance programme, and after the final dance activity. Participant consent was sought on an ongoing basis. In advance of any data collection, ethical approval to conduct the research was sought from, and approved by, the Limerick Institute of Technology. The data was analysed using thematic analysis. In the context of this research, Irish Céilí dance as an arts-based activity for those living with dementia and their care staff resulted in beneficial psychosocial outcomes including an enhanced ability for people living with dementia to reminisce. Their stories and memories of attending Céilí events in their past was evoked by participation in the dance classes and interview process. In turn, enhanced reminiscence was observed to have a positive influence on the mood and psychosocial well-being of both the participants living with dementia and the care staff participants | en_US |
| dc.format | en_US | |
| dc.language.iso | eng | en_US |
| dc.publisher | Limerick Institute of Technology | en_US |
| dc.rights | Attribution 3.0 United States | * |
| dc.rights.uri | http://creativecommons.org/licenses/by/3.0/us/ | * |
| dc.title | Some Dance to Remember: Exploring the Psychosocial Effects of the Introduction of an Adaptive Irish Céilí Dance Group Activity with People Living with Dementia and their Carers | en_US |
| dc.type | info:eu-repo/semantics/masterThesis | en_US |
| dc.contributor.sponsor | Limerick Institute of Technology and Munster Academy of Dance | en_US |
| dc.description.peerreview | yes | en_US |
| dc.rights.accessrights | info:eu-repo/semantics/openAccess | en_US |
| dc.type.version | info:eu-repo/semantics/acceptedVersion | en_US |
| dc.description.contents | Table of Contents Abstract ................................................................................................................... ii Declaration ............................................................................................................. iii Acknowledgements ................................................................................................ iv Dedication ............................................................................................................... v List of Tables .......................................................................................................... x List of Figures ........................................................................................................ xi Dissemination List ................................................................................................ xii List of abbreviations ........................................................................................... xiii 1 Chapter 1: Introduction ..................................................................................... 1 2 Chapter 2: Literature Review............................................................................ 6 2.1 Introduction ........................................................................................................ 6 2.2 Prevalence of Dementia ..................................................................................... 7 2.2.1 What is Dementia?................................................................................... 8 2.2.2 Stages of Dementia .................................................................................. 9 2.2.3 Level of Care Required .......................................................................... 10 2.2.4 Timely Diagnosis ................................................................................... 13 2.2.5 Social Prescribing ......................................................................................... 14 2.3 Post-diagnosis Supports and Services .............................................................. 16 2.3.1 Long Term Care/Nursing Homes .......................................................... 16 2.3.2 Homecare ............................................................................................... 18 2.3.3 Daycare Services ................................................................................... 19 2.4 Loss and Grief .................................................................................................. 21 2.4.1 Ambiguous Loss .................................................................................... 22 2.4.2 Disenfranchised Grief ............................................................................ 23 2.5 Social Death and Dementia .............................................................................. 24 2.6 Stigma Associated with Dementia ................................................................... 24 2.6.1 Person Living with Dementia and Stigma ............................................. 25 2.6.2 Perceptions and Language Used ............................................................ 26 2.6.3 Stigma Experienced by Family/carers ................................................... 27 2.7 Biomedical Approach to Treating Dementia ................................................... 27 2.7.1 Behavioural and Psychological Symptoms of Dementia ....................... 28 2.8 Dementia: Valuing the Person ......................................................................... 30 2.8.1 Care Staff in Dementia Care .................................................................. 32 2.9 Psychosocial Effects ........................................................................................ 33 vii 2.10 Reminiscence Therapy ................................................................................... 34 2.11 Arts-based Interventions ................................................................................ 36 2.11.1 Dance as an Arts-based Intervention ................................................... 37 2.11.2 Irish Dance as an Arts-based Intervention ........................................... 41 2.12 Irish Céilí Dance and the Céilí Event............................................................. 42 2.12.1 The Social Céilí ................................................................................... 43 2.12.2 Public Dance Hall Act 1935 ................................................................ 43 2.12.3 Sense of Community ............................................................................ 44 2.12.4 Sense of Identity .................................................................................. 45 2.13 Conclusion ..................................................................................................... 46 3 Chapter 3: Axiology .......................................................................................... 49 3.1 Introduction ...................................................................................................... 49 3.2 Researcher Profile ............................................................................................ 49 3.2.1 Personal Connection to the Research .................................................... 49 3.2.2 Educational and Professional Connection to the Research .................... 51 3.3 Reflexivity, Bias and Positionality................................................................... 52 3.3.1 Reflexivity ............................................................................................. 53 3.3.2 Capturing, Reflecting and Acknowledging Feelings Evoked................ 53 3.3.3 Acknowledging Potential Biases within the Research .......................... 55 3.3.4 Positionality within the Research .......................................................... 56 3.4 Conclusion ....................................................................................................... 57 4 Chapter 4: Methodology Chapter ................................................................... 58 4.1 Introduction ...................................................................................................... 58 4.2 Ontology .......................................................................................................... 58 4.3 Epistemology ................................................................................................... 59 4.3.1 Quantitative Research ............................................................................ 60 4.3.2 Qualitative Research .............................................................................. 61 4.3.3 Observation as a research tool ............................................................... 62 4.4 Phenomenology ................................................................................................ 63 4.5 Research Methods ............................................................................................ 63 4.5.1 Recruiting Research Participants ........................................................... 64 4.6 Interview Types................................................................................................ 64 4.6.1 Face-to-face Interviews ......................................................................... 65 4.6.2 Focus Groups ......................................................................................... 65 4.6.3 Structured Interviews ............................................................................. 66 viii 4.6.4 Semi-Structured Interviews ................................................................... 66 4.6.5 Location of Interviews ........................................................................... 67 4.7 Profile of the Research Community ................................................................. 67 4.8 Dance Activity ................................................................................................. 68 4.8.1 Shoe the Donkey .................................................................................... 69 4.8.2 Adapting the Formations ....................................................................... 70 4.8.3 Adapted Formation ................................................................................ 70 4.9 Thematic Analysis ........................................................................................... 71 4.10 Ethical Considerations ................................................................................... 73 4.10.1 Data Collection and Data Privacy ........................................................ 73 4.10.2 Ongoing Consent ................................................................................. 74 4.1 Limitations of the Research ............................................................................. 76 4.2 Conclusion ....................................................................................................... 77 5 Chapter 5: Results and Discussion .................................................................. 78 5.1 Introduction ...................................................................................................... 78 5.2 Methodology Used ........................................................................................... 79 5.2.1 Demographic of Participants ................................................................. 80 5.3 Reminiscence ................................................................................................... 81 5.3.1 Identity, Community and Personhood ................................................... 83 5.3.2 Access to New Knowledge .................................................................... 85 5.3.3 Life Story Work ..................................................................................... 87 5.3.4 Music and Dance - Creating a Sense of Identity ................................... 88 5.3.5 Embodied Remembering ....................................................................... 89 5.3.6 The Past Informing the Present .............................................................. 91 5.4 Mood ................................................................................................................ 92 5.4.1 The Rhythm of the Dance ...................................................................... 94 5.5 Mobility and Falls Risk .................................................................................... 96 5.5.1 Opinions Altered Through Adaptive Dances ........................................ 97 5.5.2 Adapting to Inclusivity .......................................................................... 99 5.6 Strengthening Bonds between Staff and People Living with Dementia ........ 100 5.6.1 Roles Reversed .................................................................................... 103 5.7 Conclusion ..................................................................................................... 103 6.1 Introduction .................................................................................................... 105 6.1 Covid-19 ........................................................................................................ 107 6.2 Synopsis of the Research ............................................................................... 108 ix 6.3 Recommendations .......................................................................................... 110 Bibliography ....................................................................................................... 113 Appendix B- Ethical Approval .......................................................................... 152 Ethical Approval Application form .................................................................. 152 Approval from Research Ethics Committee- Phase 1 .................................. 174 Phase 2 - Ethical Approval Application ....................................................... 175 Approval from Research Ethics Committee- Phase 2 .................................. 179 Final Phase Ethical Application .................................................................... 180 Approval from Research Ethics Committee- Final Phase ............................ 185 Recruitment sheet .............................................................................................. 186 Information sheet for Participants Living with Dementia and Family/carer ....................................................................................................... 187 Information sheet for Care Staff ...................................................................... 189 Participant Living with Dementia and Family/carer Consent Form ............ 191 Care Staff Consent Form................................................................................... 193 Interview 1- Questions for Participants Living with Dementia ..................... 194 Interview 1- Questions for Care Staff .............................................................. 195 Interview 2- Questions for Care Staff .............................................................. 196 Final Interview Questions for Participants Living with Dementia ............... 197 Final Interview Questions for Care Staff ......................................................... 198 Letters of support ............................................................................................... 200 | en_US |
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